Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Thursday, November 27, 2014

Thanksgiving Day Has New Meaning This Year

Today is a major holiday for those of us living in the United States (and possibly other places as well; I don't mean to exclude anyone!). It's the holiday of Thanksgiving, where, among other things, we think back upon the past year and give thanks for what we have. We usually cook massive feasts of turkey, ham, dressing or stuffing (and YES, as my mother will continually remind you, there is a difference! Dressing is not cooked inside the turkey like STUFFING is.), mounds of mashed potatoes, gravy, cranberry sauce, and more pies than we can stand to look at. Most people don't have to go to work, kids don't have to go to school, and it's a major family occasion, sometimes one of the few times a year that whole extended families might see each other. This ritual may seem odd to those in other countries, but at its core, it's intended to show that we're prosperous enough to make such a meal for a single day.

But beyond the Hallmark version is the real truth behind Thanksgiving: that of giving THANKS for what we have (or in some cases, what we don't have!). There has never been a single year in which I was more grateful and thankful than I am this year. At this point last year, we weren't sure if I was going to be home for the holiday, or stuck in a hospital 3 hours away from those I love. Even, some months before this time last year, whether I was going to live or not.

Going back over your past year can sometimes be painful, and I think about the long journey I've walked over the past 365 days. I went from a person paralyzed from an autoimmune condition called Guillain-Barre syndrome over Christmas 2012, to a healthy and active young woman who went to work every day, played with dogs, and rode and trained my horse. Just 5 months later, that recovery had done a complete 180 and I was again ill, and finally, on July 27, 2013, I was diagnosed with leukemia. At the time, we were sure it was a death sentence.

Before being sick, I'd worked at Auto Zone, a local auto parts store, in Poplar Bluff, Missouri (yes, and I can change my own oil and brakes too!), and I'm grateful for the kindness and support of all my coworkers there. Thank you, my friends, for just being you! I wish I could return, but at this point...well, who knows what the next 365 days will bring? The Auto Zone corporation even gave me a donation, something they do for employees in situations like mine. Thank you, too, Auto Zone.

While I was sick, my family was making the long drive to visit me one weekend, and they were in a car accident. They're all okay, but the vehicle was a total loss. My husband arranged to purchase a vehicle from a coworker of his, and she was nice enough to let him make payments on it. But unknown to us, they were secretly collecting donations and raised enough money for him to pay off the car, get it inspected, and registered, and even had a little left over for gas. Thank you, everyone at Gates Refurb Plant in Poplar Bluff, for your generosity.

Also, my sister, Dana Jordan, who lives in Michigan, organized a fundraiser. My brother, Matt, and his girlfriend Maria, my other sister Becky Rottenbucher, my parents, Dan and Coy Jordan, and Maria's parents, all pitched in to help. Maria's parents allowed the use of Colonial Lanes in Flushing, Michigan, and they had a bowling fundraiser. They collected donations of services from local businesses, or items to raffle off, designed T-shirts, and much more. To each of them, as well as the sea of faceless (to me anyway) strangers who participated or donated, I say thank you very much. They raised a bit over $4,000 that night, and my family needed it desperately.

My sister-in-law, Jacinda Dees, who lives in Florida, also did some fundraising with silicon bracelets from the Max Foundation, and a go-fund-me (or something similar online) where people could go to donate. She also started a Facebook page so that I could post updates (or she or my husband could, when I wasn't able to) in a single place and reach all of the people that I really cared about, all from one place! She also (on occasion) had to edit my posts because I was on so many medications, some of them for pain, that I would often fall asleep posting, or I couldn't focus on what I was posting. Now that I look back, we should have saved some of those posts...we could probably devote an entire blog post to them alone! They would go perfect with all the "text message spell check fails" that are going around everywhere! So to her, and my in-laws Cathy and Darrell Dees, I thank you from the bottom of my heart.

I need to mention my friend Denise Mercer at this point. She's the one who sent me a simple friend request on Facebook, sort of a "I heard from so-and-so that you're sick, I wanted to check in" sort of thing. Denise is a published author as well, her book is called  My Father's Table, and you can click the link to see it on Amazon. You can also get it at CreateSpace and Barnes and Noble, and for Kindle. Many of you who regularly follow my blog may be aware that I had already published Once Upon a Western Way (in April, 2012), but it was only available digitally at Smashwords. Denise was the one that started "the butterfly effect" in my life, and gave me the tools and knowledge I needed to publish in print. Butterflies hold a special significance to Denise and her family, and that's why I chose the Monarch butterfly for the cover image for My Butterfly Cancer, and part of the reason I chose the butterfly logo to represent my publishing company. Denise, my dear and wonderful friend, thank you with big hugs!

I'm thankful for all the staff at Barnes-Jewish Hospital in St. Louis, Missouri, who gave me the very best of care and made sure that I was alive to celebrate another Thanksgiving day. This includes doctors, nurses, social workers, counselors, janitors, and even the people who brought my food. I couldn't have gotten care closer to home, as we're extremely rural here, and they gave me 5 star service! I still keep in touch with some of them, and from time to time I stop there when I'm in town for checkups. And of course, I'm working to donate my books (and hopefully soon, my audiobooks) to the patients there. Thank you, all of you.

And finally, I'm ever grateful for the presence of my family. Being sick brought me and my mother closer together, and that makes me happy. My husband Jay, my kids Ally and Tasha, my best friends Val and Darlene, my (sister-from-another-mother) Michelle, Pam White (her husband had leukemia at the same time I did), all my aunts, uncles, cousins, second cousins, close friends, acquaintances, my pets at home, and anyone else I've forgotten to mention (and I'm sure there are some!): I am more thankful for you guys than ever before!

For my blog visitors (whom I am also thankful for), if you've made it this far in this long post, I'm going to ask you to do something. I'd like you to share something you're thankful for in the comments section. It doesn't have to be today, because I know some people will be very busy (as I likely will be), but take a moment to think about what you're really grateful for this year. And those of you in countries that don't exactly celebrate Thanksgiving (and I know Canada does, but it's not today) can do the same today. Leave a short comment about what you're thankful for this year, then share this post to your Twitter, Facebook, Google+, Pinterest, or any other social media you might wish to. If I can get enough comments, maybe I can write a follow up post as to what my fans are thankful for.


Thursday, November 13, 2014

The Other Side of Me

I don't usually post twice in one day. In fact, I don't think I've ever done so. And I certainly don't want to take the spotlight off my featured authors (I had one blog tour post today and will have one of my regular featured author posts tomorrow.)! But, I've been sitting here watching the movie Regarding Henry with Harrison Ford, and I just felt absolutely compelled to write a post.

I literally broke out in tears when I watched the scene where Henry and Bradley (the physical therapist) were sitting in Henry's kitchen drinking a beer. Bradley told the story of how he hurt his knees and told Henry to ask him if he minded having bad knees. The moral of the story, of course, is that Bradley would have never become a physical therapist if he hadn't hurt his knees playing football, and so never would have met Henry, and so on and so forth. And then Bradley tells Henry not to listen to anyone else tell him who he is, that he'll figure that out himself, eventually.

Before June 27, 2014, I was Henry. I was a hugely busy, type A personality, always challenging myself physically and mentally to be the best that I could be. Likely a result of my poor self-esteem; I was always trying to be better (not even really knowing who I wanted to be better than, or FOR who). And like Henry, disaster struck rapidly in my life.

For me, the tragedy was cancer. At 37 years old, a diagnosis of cancer sounded like a death sentence to me and my family. The fact that I had to be hospitalized alone so far away from home for my treatments didn't help any. And over eight months of intensive treatments, some of which almost took my life, I've returned home to begin my journey to figure myself out.

I'm no longer strong enough to return to my before cancer job (I was a manager at an auto parts store, requiring lifting, moving, and sometimes installing heavy parts, climbing up and down ladders, and so on), and I may never return there. I have good days but I have bad days too. The post-chemotherapy fungal infection that took nearly a year to treat has left scar tissue deep in my organs, and this scarring causes intense pain, sometimes preventing me from taking a full breath. I'm still underweight, still get chilled easily, and don't sleep well. I have a constant ringing in my ears, the thundering sound of a thousand cicadas. This is part of who I am now.

But ask me if I mind having suffered through cancer. Because you know what? I'm learning that I really don't! After all, had I not been sick with cancer, my dear friend Denise Mercer Blackwell might not have friended me on Facebook. If that hadn't happened, I may have never published in print. (I'd already published Once Upon a Western Way through Smashwords in April of 2012, and it was only available digitally.) Had I not been encouraged to publish by Denise, I likely wouldn't have written my other two books (My Butterfly Cancer certainly wouldn't exist if I'd not had cancer), or even started this blog, which has come a long way in a short time. I wouldn't have had the time if I still had my "regular" job to go to.

So, here I am, with you, my readers. I'm still learning who I am now, and at times I have a hard time letting go of the woman I used to be. Sure, I'm not a best-seller (though no one can know the future), and I don't expect to be a best-seller. But stories are written to be told or read, and as long as I know I have readers out there, I'll keep doing what I'm doing. I love writing! I love reading, too! Eventually, I'll learn to love the woman I am now!

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